Two years into the COVID-19 pandemic, hundreds of millions of people around the world have been infected. Although most recover quickly, some do not. These patients experience persistent symptoms, a condition now called Long COVID. Estimates range, but it appears that somewhere between 10 and 30 percent of COVID-19 patients will experience symptoms for an extended period of time. One study found half of patients had at least one symptom six months later. Given these estimates, that would mean Long COVID could be impacting between 10 million to 30 million Americans, at a minimum.
Recently defined by the World Health Organization, the condition can affect people’s ability to work and carry on with life’s activities, and has a significant impact on communities, economies and society as a whole.
This website is a one-stop resource for patients, businesses, healthcare providers, insurers, scientists and others navigating the emerging evidence and complex impact of Long COVID. It is brought to you by the Brown University School of Public Health’s Long COVID Initiative, a coalition of researchers, clinicians and experts in policy as well as strategic communications. We are committed to closing knowledge gaps and translating the latest Long COVID evidence into accessible guidance for all.
Given the disproportionate impact of the pandemic on communities of color, it is essential that our initiative apply an equity lens throughout everything we do. To this end, we will specifically call out where data and information on minorities are missing and collaborate to generate and synthesize such evidence on how Long COVID affects all populations.
Long COVID is so new, very little is known about its broader impact on people, communities, workplaces, healthcare, and society as a whole. Our initiative is applying a diverse set of research tools to address these knowledge gaps:
We are holding a series of roundtable discussions with key groups affected by Long COVID, such as patients, employers and employees, or clinicians. The goal is to develop consensus on best practices and recommendations for government, private sector, and health systems on how to effectively manage Long COVID.
Targeted surveys are being deployed to identify the social, financial, and equity impact of Long COVID. The surveys will also inform our mathematical modeling, which will estimate the population-level economic impacts of Long COVID.
New studies on the clinical features and other impacts of Long COVID are published on a daily basis. We periodically review this emerging literature, and share key findings on our research page.
To understand the burden of Long COVID on hospitals and healthcare costs, we will be diving into routinely collected health data such as administrative claims and electronic medical records. Analysis of these data will provide pragmatic evaluations of health outcomes, healthcare utilization, and costs related to Long COVID in large samples that represent the US population.
Francesca Beaudoin, MD, MS, PhD
Interim Chair of the Department of Epidemiology; Associate Professor of Emergency Medicine and Health Services, Policy and Practice, Brown University School of Public Health
Laura Chambers, MPH, PhD
Adjunct Assistant Professor of Epidemiology;
Postdoctoral Research Fellow, Brown University School of Public Health
Megan Ranney, MD, MPH
Academic Dean; Director of Brown-Lifespan Center for Digital Health; Brown University School of Public Health
|05/18/2022||Public Good News||What it’s like to live with long COVID?|
|03/13/2022||Rhode Island PBS||Rhode Island PBS Weekly- Long COVID|
|02/25/2022||Rolling Stone||First They Got Long COVID. Then, It Made Them Homeless|
|02/01/2022||CBS MoneyWatch||A cause of America's labor shortage: Millions with long COVID|
|12/24/2021||Wired||To Help People With Long COVID, Scientists Need to Define It|
|10/06/2021||Rolling Stone||People With Long COVID Are Risking Their Health Going Back to the Office|
|09/27/2021||Crooked||The Long And Short Of Long COVID with Dr. Ashish Jha|
|09/22/2021||The Brown Daily Herald||Long COVID initiative investigates long-term COVID-19 effects|
|09/10/2021||WPRI||Brown University launches initiative to research effects of long COVID|
|09/08/2021||Boston Globe||Brown University initiative aims to offer facts and advice on ‘long COVID’|
|09/08/2021||Washington Post||Biden seeks pandemic reset as cases and deaths flare|